No matter what their diagnosis, they're continually told that they can’t possibly be in chronic pain at their age.
Imagine how hard it must be to respond skillfully to a comment like that.
Several young people have told me that they’ve been openly challenged when they park in a disabled spot, even though they have the required placard or sticker.A young woman with multiple sclerosis told me that someone spit on her when she didn’t give up her seat to an older person on the subway.When he messaged me just minutes later, I felt a flush of excitement, then remembered it couldn’t go anywhere.Dying people didn’t date, so part of me did feel guilty as I replied, but just being “normal” again was so lovely that I couldn’t help myself.‘Soon we were talking constantly, but when he texted to suggest meeting up, I felt scared.However, I soon realised that, in the nicest possible way, Andy wasn’t interested in my condition, he just wanted to get to know me.
After our third date, on Valentine’s Day, we admitted we were falling for each other.
Everyone says it can’t possibly be the case, so maybe it’s all in my head.” This questioning can lead to self-recrimination and can seriously erode a young person’s self-esteem and sense of self-worth.
This ignorance about young people with chronic illness has other consequences.
‘I’d been diagnosed with a terminal brain tumour a month earlier, in January 2015, after suffering a huge seizure in my bathroom.
I was rushed to hospital, and they found a rare, inoperable tumour.
I could die following a seizure, or he might have to take care of me until the bitter end. But he said that he’d rather be married to me for a few years than not at all.‘When we got together, I worried about what our families would think.